Hi
We wish you a Healthy, happy New Year and hope all your holidays were joyful.
On December 12th 2006 Lindsey had chemo therapy into her head. This was the first of ten treatments, administered approximately once a month. She had a bad reaction and ended up back in the hospital for four days.
On December 21st 2006 she had a bone marrow test. Today at the hospital we received the results. The transplanted umbilical cord stem cells are 100% en grafted having replaced hers which is the first big step for healthy bone marrow production. Now the new cells have to coexist with the rest of her body.
She has been doing better each week. She has more energy, stays up longer and she does more each day.
So we really have a lot to be thankful for. So far so good!
Tuesday, January 2, 2007
Tuesday, November 28, 2006
November 28, 2006
Hi everyone,
Lindsey is doing really well. The doctor has dropped her office visits to twice a week. All her numbers are going up everyday. She is slowing down on transfusions. Her platelets are over 100,000! Her red blood is just over the threshold for needing a transfusion. She is still dealing with the side effects from the medication.
Right now she does not need donations of Platelets and Blood.
If you would like to do something for Lindsey and all whom are inflicted with leukemia, we have set up a fund at Sloan Kettering that will go directly to the Leukemia Research Team. Please make checks payable to Memorial Sloan Kettering Cancer Center and in the memo section mark Lindsey Brass Fund and mail all gifts to:
Ms. Katie Kotkins
Memorial Sloan Kettering Cancer Center
633 Third Avenue, 28th Floor New York, NY 10017
Katie is also available to answer any questions you may have. Please feel free to contact her directly at (646) 227-2511 or Kotkinsk@mkscc.org.
Thank you for all your support and we hope you will join us in this effort to raise money for Leukemia research.
Thanks again,
Barbara, David and Lindsey
Lindsey is doing really well. The doctor has dropped her office visits to twice a week. All her numbers are going up everyday. She is slowing down on transfusions. Her platelets are over 100,000! Her red blood is just over the threshold for needing a transfusion. She is still dealing with the side effects from the medication.
Right now she does not need donations of Platelets and Blood.
If you would like to do something for Lindsey and all whom are inflicted with leukemia, we have set up a fund at Sloan Kettering that will go directly to the Leukemia Research Team. Please make checks payable to Memorial Sloan Kettering Cancer Center and in the memo section mark Lindsey Brass Fund and mail all gifts to:
Ms. Katie Kotkins
Memorial Sloan Kettering Cancer Center
633 Third Avenue, 28th Floor New York, NY 10017
Katie is also available to answer any questions you may have. Please feel free to contact her directly at (646) 227-2511 or Kotkinsk@mkscc.org.
Thank you for all your support and we hope you will join us in this effort to raise money for Leukemia research.
Thanks again,
Barbara, David and Lindsey
Thursday, October 26, 2006
October 26, 2006
Dear Friends,
We are finally going home after 7 weeks in isolation, though Lindsey will go back and forth to the hospital every other day for outpatient testing, medicines and transfusions. Please continue your donations of blood and platelets as her treatment/recovery period will be ongoing for the next six months to a year.
As you know, Lindsey has been battling Leukemia since April of 2005. Today, after overcoming innumerable challenges, hospitalizations, and a stem cell transplant, we as a family are asking you to help us give back to Memorial Sloan-Kettering Cancer Center (MSKCC) in Lindsey’s honor.
You have all played a huge role in our fight to date by so generously donating blood and platelets, supporting our search for a stem cell donor, as well as your expressions of concern and encouragement. Thank you!
Our Doctors at MSKCC are currently working on numerous investigational approaches, by means of clinical trials, to improve the treatment of AML. For example, they are working to refine combination chemotherapy, investigate new transplantation approaches, and identify what causes Leukemic cells to multiply.
We would like to raise funds in honor of Lindsey and her amazing attitude as she bravely fights this terrible disease. All gifts will be directed to the ongoing research conducted by the team of doctors who have treated Lindsey.
Please mail all gifts to:
Katie Kotkins
Memorial Sloan-Kettering Cancer Center
633 3rd Avenue, 28th Floor
New York, NY 10017
Katie is also available to answer any questions you may have. Please feel free to contact her directly at (646) 227-2511 or kotkinsk@mkscc.org.
We hope that you will join us in this effort and thank you again for all of your support during this challenging time.
Warmest wishes,
The Brass Family
We are finally going home after 7 weeks in isolation, though Lindsey will go back and forth to the hospital every other day for outpatient testing, medicines and transfusions. Please continue your donations of blood and platelets as her treatment/recovery period will be ongoing for the next six months to a year.
As you know, Lindsey has been battling Leukemia since April of 2005. Today, after overcoming innumerable challenges, hospitalizations, and a stem cell transplant, we as a family are asking you to help us give back to Memorial Sloan-Kettering Cancer Center (MSKCC) in Lindsey’s honor.
You have all played a huge role in our fight to date by so generously donating blood and platelets, supporting our search for a stem cell donor, as well as your expressions of concern and encouragement. Thank you!
Our Doctors at MSKCC are currently working on numerous investigational approaches, by means of clinical trials, to improve the treatment of AML. For example, they are working to refine combination chemotherapy, investigate new transplantation approaches, and identify what causes Leukemic cells to multiply.
We would like to raise funds in honor of Lindsey and her amazing attitude as she bravely fights this terrible disease. All gifts will be directed to the ongoing research conducted by the team of doctors who have treated Lindsey.
Please mail all gifts to:
Katie Kotkins
Memorial Sloan-Kettering Cancer Center
633 3rd Avenue, 28th Floor
New York, NY 10017
Katie is also available to answer any questions you may have. Please feel free to contact her directly at (646) 227-2511 or kotkinsk@mkscc.org.
We hope that you will join us in this effort and thank you again for all of your support during this challenging time.
Warmest wishes,
The Brass Family
Thursday, October 12, 2006
October 12, 2006
Hi everyone,
Finally some good news to report. Today we got the results of last Thursday's Bone Marrow test. They have successfully grafted the umbilical cord blood to her bone marrow. Her white blood count is 1,700. 7,000 is normal. She is on her way to recovery!
Last Saturday her triple port in her chest split and blood was spurting out, quite frightening. They clamped it shut and accessed her single port in her chest. This meant the only I.V. medicine, anti rejection drug, was going into her mediport, whereas she had three lines going simultaneously with other helpful drugs. As it was Saturday, they called in a surgeon to remove the broken triple port and place a new one on her other side. They were worried as her white blood counts were low for operating. But we didn't have a choice. She was stable after the procedure and on Tuesday her counts miraculously moved up to 1000! Still feeling very ill and hurting from this procedure, we thought she was probably going to have to stay another month, very depressing. Then Wednesday came and we had all this good news.
Now that her white blood cells are coming up , her body will start to repair itself. She has not eaten and has been sleeping most of the time. They will not release her until she eats and can move around better. So we have some more recovery time to spend here.
When she is released, she has to come back to the hospital frequently for her transfusions and I.V. medicines. So please continue to give blood and platelets. We couldn't have done this without you!
Thank you for your continued prayers.
Fondly,
Lindsey, Barbara & David
Finally some good news to report. Today we got the results of last Thursday's Bone Marrow test. They have successfully grafted the umbilical cord blood to her bone marrow. Her white blood count is 1,700. 7,000 is normal. She is on her way to recovery!
Last Saturday her triple port in her chest split and blood was spurting out, quite frightening. They clamped it shut and accessed her single port in her chest. This meant the only I.V. medicine, anti rejection drug, was going into her mediport, whereas she had three lines going simultaneously with other helpful drugs. As it was Saturday, they called in a surgeon to remove the broken triple port and place a new one on her other side. They were worried as her white blood counts were low for operating. But we didn't have a choice. She was stable after the procedure and on Tuesday her counts miraculously moved up to 1000! Still feeling very ill and hurting from this procedure, we thought she was probably going to have to stay another month, very depressing. Then Wednesday came and we had all this good news.
Now that her white blood cells are coming up , her body will start to repair itself. She has not eaten and has been sleeping most of the time. They will not release her until she eats and can move around better. So we have some more recovery time to spend here.
When she is released, she has to come back to the hospital frequently for her transfusions and I.V. medicines. So please continue to give blood and platelets. We couldn't have done this without you!
Thank you for your continued prayers.
Fondly,
Lindsey, Barbara & David
Sunday, September 10, 2006
September 10, 2006
Lindsey is back in the hospital, and needs blood and platelets immediately. If you live in the New York City area, you can make a directed donation for Lindsey, regardless of your blood type.
If you donate whole blood, Lindsey will get your red blood cells, and your plasma will be given to someone who matches your blood type. You can donate whole blood every 56 days.
Because platelets are not type-specific, Lindsey will get your platelets no matter your blood type. You can donate platelets twice within a 7-day period if there is at least 72 hours between donations. You may donate up to 24 times a year.
Nothing will be wasted; anything Lindsey doesn't use will be given to another patient in need. Donations must be made at Sloan Kettering Cancer Center in Manhattan. To make an appointment, please call Mary Thomas at 212-639-3335. When you leave a message for Mary speak clearly and make sure you say you are calling to donate for Lindsey Brass. For more information visit the Support section.
thank you so much for meeting this critical need,
The Brasses
If you donate whole blood, Lindsey will get your red blood cells, and your plasma will be given to someone who matches your blood type. You can donate whole blood every 56 days.
Because platelets are not type-specific, Lindsey will get your platelets no matter your blood type. You can donate platelets twice within a 7-day period if there is at least 72 hours between donations. You may donate up to 24 times a year.
Nothing will be wasted; anything Lindsey doesn't use will be given to another patient in need. Donations must be made at Sloan Kettering Cancer Center in Manhattan. To make an appointment, please call Mary Thomas at 212-639-3335. When you leave a message for Mary speak clearly and make sure you say you are calling to donate for Lindsey Brass. For more information visit the Support section.
thank you so much for meeting this critical need,
The Brasses
Friday, September 8, 2006
September 8, 2006
Hi Everyone,
We are back in the hospital since Wednesday for a transplant. Unfortunately, the doctors said we won't find an unrelated donor because of my genetic coding. There were too many mismatches.
Luckily, we found a good match in the umbilical cord bank. We are part of the double cord blood transplant trial. The doctor that wrote the protocol is now with Sloan and is head of the department. We started Chemo on Thursday which will finish Saturday, then four days of radiation. My transplant will be on Thursday.
We are in isolation, we have to be very cautious, so we are not having visitors.
We want to thank everyone for helping with and singing up for the donor drive.
We want to thank you all for your kindness, caring and support.
The Brasses
We are back in the hospital since Wednesday for a transplant. Unfortunately, the doctors said we won't find an unrelated donor because of my genetic coding. There were too many mismatches.
Luckily, we found a good match in the umbilical cord bank. We are part of the double cord blood transplant trial. The doctor that wrote the protocol is now with Sloan and is head of the department. We started Chemo on Thursday which will finish Saturday, then four days of radiation. My transplant will be on Thursday.
We are in isolation, we have to be very cautious, so we are not having visitors.
We want to thank everyone for helping with and singing up for the donor drive.
We want to thank you all for your kindness, caring and support.
The Brasses
Wednesday, August 16, 2006
August 16, 2006
Thank to everyone for making our Long Island Bone Marrow drive an incredible success - with only 5 days to plan, promote, and prepare, 288 donors registered in 4 hours! The test kits are winging their way back to the Gift of Life Bone Marrow Foundation where they will be processed and entered into the database to be matched against Lindsey and the hundreds of others who are searching for a donor. Special thanks to Congregation Beth Torah, Newsday, and all of the volunteers who worked so efficiently and professionally!
The Bar Night after the drive was a huge success as well, raising over $6,000 for the Gift of Life Foundation, earmarked for testing on Lindsey's behalf.
Many, many thanks to everyone for your help and support,
The Brass Family
The Bar Night after the drive was a huge success as well, raising over $6,000 for the Gift of Life Foundation, earmarked for testing on Lindsey's behalf.
Many, many thanks to everyone for your help and support,
The Brass Family
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