July 28, 2006

So my Doc says that barring anything crazy happening - I'm going home tomorrow! He wants to take me off antibiotics today and make sure my blood counts are OK tomorrow. I probably won't get out of here until after 5pm - it always takes a while - but I'll take it!

I'll have to come in Tuesday for a check up and as soon as my platelets are up high enough I'll be scheduled for an OMAYA implant, which is like the port in my chest but it will be on the top of my head. Gross - I know, but my hair will grow over it and it should be small enough where you won't see it (which is good since they don't take it out...ever). Once the port heals, I'll be getting chemo to the brain to treat the leukemia in the spinal fluid. They do it to the brain because that's where the spinal fluid is made. My Doc said the chemo will be done as an outpatient - but I'm not sure how often. Anyway, point is - I'M GOIN' HOME!

July 21, 2006

So my doc just left and said that he hasn't seen a good enough match yet, but he hasn't seen all the 9 - maybe only 4 or 5. So i'm gonna try to step up the fundraising... he said we might just be counting on the drive... but i also know that the gift of life is doing drives all over the place so I feel a little better. I can't tell you how much it means to me that everyone got on this so fast. the doctors don't like to waste time. At this point we really don't know how long I can stay in remission (if at all). The other good news is he likes to do about 4 weeks of building up strength before the transplant. AND I will have a break between this chemo and when they go back to the spinal fluid. mixed emotions right now.

July 18, 2006

There's no new update, but I'm feeling OK. Miserable with these side effects and don't feel much like chatting or being in a good mood. I'm saving all my strength. I'm walking so much better and it's getting better every day. We're playing the waiting game - not sure when we're leaving or what the very next step will be.

What we do know is that I will be having a stem cell transplant in the future... but we're looking for a match. My wonderful friend (some of you know her) Becca and her sister and husband have set up a website for me. www.matchlindsey.org

This website is to help with the Bone Marrow Drive that my fabulous friend Becca is coordinating with Gift of Life.

So if you check out the website you will see what is in the making. For the most part each link on the left has a small paragraph except the "donor education" which is long but interesting. My friends will be posting future updates there as well. If you have questions about the transplant and matches - please don't ask me. It's difficult to say over and over and it makes me anxious. There are great links on the website!

If anyone is interested in helping with fundraising, marketing ideas, with the actual drive (which looks like it will be Wednesday August 30 and Thursday August 31), or if you have any ideas or suggestions, email volunteer@matchlindsey.org

Anyway, I'll let you get to it. Thanks for all the emails and blood products and the friends with the blood products. The website will be updated when I have something to new to share!

Thanks for your support =)

Lindsey

July 2, 2006

I'm sorry for being so distant but I have not been feeling well at all. I finished radiation to my brain, but they stopped the spinal tap treatments because they found the leukemia in my bone marrow again, which they need to treat immediately. I have been on such a high dose of steroids for the radiation that I can barely walk. I have a hard time moving anything from my abdomen down. It's so exhausting I can barely talk.

So I talked them into letting me out Friday afternoon for a very short weekend. We are returning on Monday to begin intense chemotherapy like I had last year. I'll probably be in for a month or so. The idea is to get me into remission again so I can have a stem cell transplant (which is the same as a bone marrow transplant) as soon as we find a match. They have started a search in the general database and my first cousins have been tested (but I won't know for another 2 weeks if they are a match).

I appreciate all the phone calls and emails and will let you know when I am up for visitors. I'm still not sure what to expect, but trying to keep my sense of humor =)

Lindsey