I'm sorry for being so distant but I have not been feeling well at all. I finished radiation to my brain, but they stopped the spinal tap treatments because they found the leukemia in my bone marrow again, which they need to treat immediately. I have been on such a high dose of steroids for the radiation that I can barely walk. I have a hard time moving anything from my abdomen down. It's so exhausting I can barely talk.
So I talked them into letting me out Friday afternoon for a very short weekend. We are returning on Monday to begin intense chemotherapy like I had last year. I'll probably be in for a month or so. The idea is to get me into remission again so I can have a stem cell transplant (which is the same as a bone marrow transplant) as soon as we find a match. They have started a search in the general database and my first cousins have been tested (but I won't know for another 2 weeks if they are a match).
I appreciate all the phone calls and emails and will let you know when I am up for visitors. I'm still not sure what to expect, but trying to keep my sense of humor =)
Lindsey
Sunday, July 2, 2006
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